by The Friedreich’s Ataxia Research Alliance (FARA) is a non-profit organization dedicated to finding a cure for Friedreich’s ataxia, a rare genetic disorder that affects the nervous system and leads to progressive disability. FARA’s mission is to fund research that will ultimately lead to effective treatments and a cure for this devastating disease.
One of the key ways in which FARA works towards achieving its goals is by promoting exercise as a way to improve the quality of life for individuals living with Friedreich’s ataxia. Exercise has been shown to have numerous benefits for those with neurological disorders, including improved muscle strength, coordination, and balance. FARA encourages individuals with Friedreich’s ataxia to engage in regular exercise as part of their treatment plan, in order to maintain mobility and independence for as long as possible.
In addition to promoting exercise, FARA also works tirelessly to raise funds for research into Friedreich’s ataxia. The organization relies on donations from individuals, corporations, and foundations to support its research programs and clinical trials. FARA organizes a variety of fundraising events throughout the year, including bike rides, walks, and galas, to raise awareness and funds for Friedreich’s ataxia research. These events not only help to raise money for a good cause, but also bring together individuals and families affected by the disease, creating a sense of community and support.
Advocacy is another important aspect of FARA’s work. The organization advocates for increased funding for research into Friedreich’s ataxia at the federal level, and works to raise awareness about the disease among policymakers, healthcare providers, and the general public. FARA also provides support and resources for individuals with Friedreich’s ataxia and their families, helping them navigate the complex healthcare system and connect with other families facing similar challenges.
One of the ways in which FARA combines exercise, fundraising, and advocacy is through its annual Ride Ataxia cycling events. Ride Ataxia brings together individuals from across the country to participate in bike rides of varying distances, raising money for Friedreich’s ataxia research and raising awareness about the disease. These events are not only a fun way to stay active and support a good cause, but also a powerful way to advocate for increased funding for research into Friedreich’s ataxia.
Another way in which FARA promotes exercise, fundraising, and advocacy is through its FARA Ambassador Program. Ambassadors are individuals who are affected by Friedreich’s ataxia and are passionate about raising awareness and funds for research into the disease. Ambassadors participate in events, speaking engagements, and fundraising activities to help spread the word about Friedreich’s ataxia and the work of FARA. By sharing their personal stories and experiences, FARA Ambassadors help to educate the public about the impact of the disease and the importance of finding a cure.
In addition to its fundraising and advocacy efforts, FARA also supports research into Friedreich’s ataxia through its grant program. The organization awards grants to researchers and scientists who are working to better understand the disease and develop new treatments. FARA’s research grants have helped to advance our understanding of Friedreich’s ataxia and have contributed to the development of potential therapies that could one day lead to a cure.
Overall, the Friedreich’s Ataxia Research Alliance is dedicated to making a difference in the lives of individuals with Friedreich’s ataxia. By promoting exercise as a way to improve quality of life, raising funds for research into the disease, and advocating for increased awareness and support, FARA is working towards its ultimate goal of finding a cure for Friedreich’s ataxia. Through its innovative and collaborative approach, FARA is making strides towards a future in which individuals affected by Friedreich’s ataxia can live healthier, more independent lives.
